Some rain hate
I have a strong dislike and aversion for heavy rains, these days it rains here, it kills my whole system, makes me even more hidden, weak and physically painful to a level my body cannot take it. When I had injections everyday; it was worst, the needle poking pain in the whole body would last long, wont go away. The numbness and tingling sensation in the body stay, its a sideffect of the horrible meds. The intake of the pills is nauseating and intolerable especially during rainy time. I cannot imagine someone taking these meds in an uncomfortable weather, harsh climate or any intolerable conditions, coz having taken these meds for long, to me its an almost sure thing that in discomfort I vomit and reject the meds and there is this anxiety racing on wat if I vomit the meds , knowing no doses should be missed.
I cannot go near the meds, would touch it only when I had to put it in my mouth, would then rush to wash my hands repeatedly until the tinge and smell of the meds leave (which only I can feel it seems, my mom who handles the meds says she dont find any particular smell in the meds). The meds are kept far from me, I wont go near it. After having the meds, then I stay steady for long until I am sure I wudnt throw up. Sometimes I stuff something edible in my mouth so that I dont throw up. Before wen I was on a different regimen I wud only be given water in a steel or plastic mug since I wud throw the mug in anger for having to take the meds. There was so much anger and I felt betrayed everyday for having to take the meds. And I cannot believe its still going on.
This is one of the many issues in the intake of drug resistant tuberculosis medicines. And here I ws noting about the difficulty in just the intake of it. And we r trying to put this out in a world where inequalities prevail in its worst forms, where even diagnosis of any illness itself is a priviliege, so we fight for the diagnosis, for the right meds, the care, we struggle with the existing stigma related to the same and fight to exist. Also, this is coming from someone like me whose meds and ration reached home in time, had food to eat for today, has a bed to rest wen in pain and has a house with a roof that can survive heavy rains and yet do not have the energy to deal with DR TB. I am sure even if its diff for all patients, there wud be someone with similar issues and sideffects as mine, I do not know how they wud be managing to survive this if meds, ration,care, help, place to rest in comfort and everything that requires to ease the situation is just not there.
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